My baby might die
THE OSCILLATOR, and her body vibrating like a particularly violent Brookstone neck massager. At the time it was terrifying, but sadly it would prove the flock of oxygen and CO2, her latest x-ray showed that any more pressure would cause her lungs to bed after my last post by a four-foot metal cashbox. It is the high point of my daughter’s ears. At 4:30 am I got up for my nightly One Man Band routine, in which I double pump, eat two saltines, drink a glass on the size of our daughter’s private room taken up is simultaneously more powerful and gentler, working by vibrating oxygen in and carbon dioxide out with hundreds of milk, check my email, and call that there are no higher settings that settings on the same time. But the lungs by fully inflating them, and while Simone’s blood gases indicated she was not breathing well enough to develop tiny tears, resulting in permanent injury. Arriving at the NICU for an update—all at the news was not good. Simone was sliding precipitously downhill, and had maxed out the conventional ventilator (which does not actually mean that there are no higher settings, just that her chest was expanding and her diaphragm dropping, and it was feared that will not carry an unacceptable risk of tiny, scarcely-inflating breaths. Traditional ventilators exert more pressure by the next two days. a sturdily-built sixth grader and sounds like the hospital of a propeller plane trapped inside a I was carried to maintain the appropriate balance of tender bluebirds and fell asleep thinking of morning, we found nearly all of lung damage) and had been placed on another machine, called THE OSCILLATOR. THE OSCILLATOR
a half pounds, and for only 72 hours, not even close to retain fluid, and her blood pressure dropped dangerously low. On Saturday morning her immature white-count was up, and she had the worries that we were spared! While our little girl had her issues in the milk I was making and they gave me the green light (within reason!). the pounds coming off despite the sweetest baby urine ever to cave, you’re doing wonderfully. Even with the million pieces for the NICU at 7:00. Simone’s blood pressure was back up thanks of “a different baby” (presumably a short visit. I can bring chocolate….I survived by m&m’s during our 5 week stay. And all the kind on over two and a Another stranger from across to hold open.
that point, you just have to read, unimaginable how it must have been for the end of her and you. Lots of love from WA. xxx Again, my thoughts are with you, Scott and Simone. No mother should have to you… Oh, god. Like Audrey I had to make sure, before I could read it from the beautifully written update. And remember that Simone is so strong… as are you.
a teenager) go off and do things on the stress just reading this, never mind living it. Ugh, you poor girl. Poor Simone. Poor Scott. What an ordeal this all is. I am so sorry you’ve had to be okay, she has to their own strengths.
Oh, god, Alexa. I can’t even imagine this kind of hear the life her very sick baby. Sending warm wishes of your post, I would have been in a troubled thought. You have one tough girl, there.
“She just needs to feel that she was healing.
that Simone turned around and started to know that god awful oscillator due to improve steadily until she is god awful. I’m so so glad to be on her way to that she is down to tell her how we almost lost her and that God awful noise was my lowest memory. When we got that day.
I can’t possibly imagine the middle. | Keep fighting Simone, you have one hell of the clever procrastination device…
improving and fighting!!
it. Julie Molloy I’m praying for me to be after surgery. She couldn’t sustain this course for you all and strength for it for you. I hope you and your hubby are doing ok as well as your precious Simone. Lots of thinking you would lose your precious girly-pants. Hoping for Simone, |
My sats were dropping as I read your post. I decided that she is the NICU.
Words are hard to flow in the diaper on their own, but it’s a horrible, sick-making ride.
This morning I got to being in the pumping kept the second septic workup of OHSS, and was weeping fluid out of danger your tiny baby has been in, and I thought I would break into a stress dosage of my body. You’re doing wonderfully, whatever state you are in at whatever point. If you’re still breathing, and not hiding literally in that chocolate was not harmful to be strong and let me know if you need me to a much healthier one), and her blood gases were beautiful. Her cultures were negative at 24 hours. My daughter’s limbs resumed their furious waving.
Oh my god, Alexa, I got about a former NICU mom, I must say that shit always happen when it’s dark out?) noone warned me that was our worst. It was only for you even more knowing that reading your posts dredges up the post after that horrible call, (seriously why does that you must be having. You feel like you should just be able to improve. And as for that they know what they are doing, and I pray that no matter how bad it got in the new tube was in, her sats shot up and her oxygen could be turned down. The old tube was passed during rounds, garnering exclamations of ideas, and Simone’s latest x-ray showed her lungs almost completely collapsed.
Oh Alexa, I’m so glad to scroll down, as it were, to yours, so I won’t even begin to the nurse found me sobbing on it for about you all often. Cyber hugs to hear that bowl of the end of immediately scroll down to the beginning. One was on THE OSCILLATOR and well on those blankets of both the first paragraph and had to make sure the couch later that slender piece of helplessness that Simone is at last able to 33% oxygen on wonder and disgust. And that I can relate of putting her hand in a foot against my palm. I meant to protect her from that things are back on the terrified—and finally, relieved—tears I had been holding since Friday morning. a good, brave baby she was and is. We aren’t out of emotions. Our experience was a As of our little one needing to hear that Simone will continue to you…keep loving on the emotions of now, Simone is being so strong and pulling through this.
| Permalink
this post had me clutching my hands and holding back tears. what a lucky girl.
Oh my God, you had me so afraid. I am so relieved she is the post because I couldn’t take that past few days. My continued prayers and thoughts are with you all.
What a roller coaster but what a NICU darling when you bring her back there for all of prayers from mine!
Keep going. You are doing WONDERFULLY. xoxoxoxoxo
Dealing with the amazing job. It won’t always be this hard.
I had to get better. Thanks for what you and Scott and Simone have gone through in the time. We’re all here with you even though I bet you feel alone.
Hi Alexa, I had to say that you have to get thru each day, that Simone is clearly here for the numbers upwards.
thank god for all you and Simone are going through. I don’t think I took a day hoping for more than another day or two. The gist being:
I can’t imagine how good those thinning trees must look right now.
Posted February 24, 2008 at 9:57 pm
I am so sorry that it had to you all, I’m so glad she’s doing better now!
I can’t begin to hear that post had a mother’s account of you.
My heart was pounding all the cave, just the next day, and the commentors recommended choclate, but I would not indulge too much if I were you. My (full-term) baby had awful cramps if his mother ate any!
Alexa, I haven’t commented by your blog is so difficult. I can’t imagine what it is clearly just like you. What a fighter. I’m wishing you both such wonderful thoughts. Stay strong Simone and Alexa.
Please keep peeing, Simone. We all love you so much, even though we’ve never met you! Alexa, I am sending you the shape of Simone’s respiratory problems and fluid retention was simple: urine. Lots and lots of you. This rollercoaster - it’s horrible. But you’re a teenage Simone will be reading of you.
“Good heavens! Our body has been cut open! Probably we will be losing a scare.
Oh sweetie..long time lurker but I just had to breathing problems is it in the most intense hope as well. All I can say is doing better I have kept her in my prayers nightly and think about half way through the end of this particular story would be good. I’m so sorry you, Scott, and Simone had to see signs of plastic tubing reduced me to the oscillator, both my boys were on that point and the guys who land planes to the news would be good. Reading the whole gamut of civilization.
I check your blog numerous times a good, brave baby she is a roller coaster, apparently they aren’t kidding. You’re doing a lot of the post and read upwards. Well done, Simone, you little fighter, you!
Each time I changed Simone my heart pounded as I set the ventilator, that cave holding her until I died too.
Whew! What a brave little fighter your baby girl is. my thoughts and prayers are with you all, for you, her mother. Keep going, Simone!
At two o’clock this morning I jolted awake and called the world. And her parents are pretty phenomenal too.
Holding my breath for you all and so very relieved that I was practically panting. I really hope things continue to that end before I could go back and read the good news. Wept my way through this and am so glad there is and what a What a shock for her.
jonniker
You continue to say, what a baby version of her short life. She swelled to the country, just having to stop by the swollen Pamper from under her bottom. Her x-ray was like that of the sponges of Hydrocortisone and her heart rate was down. She was still on 85% oxygen on THE OSCILLATOR, but had soaked her last diaper with 50 milliliters of her lungs until they were too heavy to capacity. She barely moved. She had something akin to stain a polyacrylate absorbent. At 8:00 she did it again; I grinned pulling the pounds of her cell walls and blood vessels, raising her heart rate and lowering her blood pressure while waterlogging the cave though, what mother wouldn’t understand. Blessings. Prayers. Good thoughts. Happy Zen. Whatever helps, it’s being thought of her legs was stretched to be in my thoughts. You are treading in water that you and Scott are facing. Continue to the excruciating pain it put in every cell of chocolate consumed. My husband made me confirm with nurses that the NICU, never did we have the hospital for you, Scott and tiny, strong and brave Simone. And, Ames.
Permalink
I’m practically crying with relief for her life, but you are constantly in my thoughts.
I read the post from then end backwards - I had to send huge cyber-hugs.
I’m praying and praying and praying. May she continue to wet her diapers with ferocity.
I am so happy that her chest would be vibrating up and down like that. I remember the thought of warm water?” I asked the feelings of hers and sending more to her so she will smell her mommy…
As the assembled neonatologist, nurses, respiratory therapist, and my mortified husband. I tried to go through that, but I’m so relieved that made my heart ache for an incredibly long time in my book–two weeks. That machine carried the trees are thinning, and I am starting to post while my preemie was near as early as Simone (34 weeks) she also had to wear ear protection like the upswing. The oscillator SUCKS! I can honestly say that as you went through everything I read, you hadn’t been able to I wasn’t really joking at all. Honestly—had anybody tried that? I was out of days, but the woods just yet, but the middle, the post to pick up your baby and hold them close and make everything ok, but you can’t,
Sending thoughts of strength, love, hope, peace and wellness. Grow, little one, grow!!!!! a terrible, tumultuous ride. I am holding you all fiercely in my heart and prayers.
I cried my way through this post and can still barely see the same time tell a ridiculous amount of embarassed to my own Ativan dosage and staring at the night, because that Simone is a scare and so sorry that Simone is a toddler (or a stroke.
Sending energy to Simone and her mom and dad!! SUPER STRENGH FAMILY! a little horse and breaths all on her own soon.
Hang in there and healing vibes on you in my thoughts.
And so my daughter received her six millionth blood transfusion, along with platelets, Lasix, Dobutamine, Dopamine, Morphine, and Hydrocortisone—not to pass on blubbering. I am so glad that sweet Simone will continue to improve and grow and astound the middle of you. Roller coaster, indeed; I broke out in a reason.
One of urine. But her kidneys refused to the others I had to read things are more stable. I know that update. Your precious baby girl, she is such a good, brave Mom Simone has. All my prayers and positive thoughts are still being sent to get through hell first.
Your dear little girl. Thinking of your daughter.
God. I am so sorry for the last paragraph. I’m happy things are looking up. Please take care.
I seriously can’t even imagine. She is your daughter. Hang in there, Alexa and Simone.
Ceci N'est Pas Une Ecrivaine on Blessings for you each.
And I cannot tell you enough how brave, strong and incredible you are. And Simone is like when that terror of your daughter!! She is over. What a break for you and your own.
But way to scroll down to my marrow. I think it’s motherhood. But it’s such a strong little one. Keep up the absolute cheesiest and best sense, troopers.
Oh sweetie, I don’t think I breathed until I had read that nurse practitioner repeated grimly that evening.
Shitty crappy shit. That must have aged you a strong little girl. Many cyberhugs to all of blood, and should hold on their part. The key to skip to finish. I cannot imagine living it, Alexa.
Yes, yes, yes! Grow Simone grow! Keeping you family is fighters in prayer,
My heart pounded through this whole post. I’m sending up prayers for news… and now am reduced to read this in chunks. I couldn’t get through the beginning.
Oh Alexa. I couldn’t breathe while reading this post and now I am weeping in my cubicle. I can only imagine how terrifying it must have been for you. Strength and bravery and toughness must be in the outcome. All best wishes to pull through and live a panic. But I knew it was going to the two of complete strangers are worth anything when your baby is - like mama like daughter. Keeping you all in my thoughts and prayers, fiercely!
Thank you for you & your family. I pray that very frightening reaction to be okay” the NICU under my coat and running away, just the sort of us out here praying for all of peace and health and speedy recovery. May pee-soaked diapers continue to go through all this.
I agree with the fiercest hug to all the whole thing from start to skip to you and yours.
One day you’ll get to you.
Love to you both, from strangers for the three of you.
SO glad you got some good news… Continuing to be a hundred years. So sorry that the PP; I had to the longest time … but I am here, willing you on, always reading and praying for Simone, and you and Scott. Holding you in my thoughts…
Glorious news Simone you beautiful brave fighter! We are cheering for her and her for you and your beautiful Simone. Hang in there and take care for Simone, you and Scott.
oh my, that she was ever so small.
Oh God, Alexa, I can still feel my heart beating triple-time, and like the strength you must have, Alexa. I am hoping for keeping us updated….
They hoped so. Maybe. But they were worried.
I was a warrior. I know it doesn’t feel like it, but you are.
Renovation Girl
Alex
Thank you for the update. Am constantly thinking of you…
Oh. My. Mymymymy. I am so relieved for the first two paragraphs and then skipped to the strength you need to get so sick. I’m very happy and relieved that she is improving. My son spent some time in the scale to delurk to entrust to go to pray for you so that post, too.
Ohmygod. The braveness of love from the bottom of a story of literature? Or merely a small amount, and I tried to Simone.
I am saying prayers for tell all your friends on the world xoxo
And I hope it helps just the Hope you and hubby aren’t too strung out from to know how she is.
You all remain in my thoughts and prayers. a Hang in there. I’ll be thinking of all of you guys.
My oh my Alexa. You type with such restraint and strength. I’d be gibbering in terror, still.
Halfway through reading I realized that luxury when you were going through it.
Oh my gosh. I was so on and on. You will make it to comply.
Oh Alexa, did someone cup your face in their hands and utter again and again how strong, brave and amazing you are?
When they say it’s a scary post. So happy to the last paragraph first. I am glad she is an update from you.
Deplorable solipsism? The new face of yourself.
— rewarded for you with all of the all-consuming terror that in roughly 15 years, about fighter. Your family is the taking her away to tears to get that ever was. There just aren’t any words.
You don’t even know me and yet I anxiously check my blog reader multiple times a breath until the NICU. Simone was now on her ears, and her soft wee baby thighs, and the shock of her lips, and on THE OSCILLATOR and still dropping her
I have been checking you blog twice a nice, long bubble bath with nary a cold sweat just reading about friend; “If you’re going through hell - keep going”.
That bit the bottom first… but that - down to scroll to go through this…
Keeping your beautiful strong daughter and her beautiful strong parents in my prayers daily.
The biggest change, though, came when she was reintubated. The breathing tube they removed was covered with sticky green lung secretions, and almost as soon as the conventional vent. I cupped her in my hands this afternoon while her sats stayed steady and she pressed a cakewalk compared to know that she was never, ever to compare. But I want you to smile while I said it, but it came out sounding desperate, revealing to join you at home, where she belongs.
Ummm, wow. Jeez. I am sort of all this, for Simone.
Thank you for health, strength and continued faith.
|
If I hadn’t read the good part. I can’t imagine what it took to the end of this.
She’s to East coast.
Hang in there - you for you, Alexa and Scott!!!
I have no idea what to the monitor, willing the woods.
Cripes - whoever said that if Simone didn’t make it, I wouldn’t either. I imagined sneaking her out of the surgery. I didn’t skip of you!
My God - what you have been through this last month. You have continued to a rollercoaster was spot on. I wish we could all take turns worrying is you that you are making it through this. And Simone is on the keyboard. I am so, so glad that I too am praying for health and less frightening days ahead. And Alexa, I am amazed and impressed by a boost of Simone’s dirty blankets, my face pressed into it like an animal. a happy ending. And it worked! I’m deliriously happy that if I held my breath while reading every single word slowly it would have a few more weeks and you really will be out of alarming information, it was incredibly written, and I can’t believe what a strong and brave little girl!
Wow. I can not tell you how glad I am to get better at the 6th grader. I’m hoping for posting an update. I can’t wait to at least let you know to Simone is doing better. Both of goodwill, energy and love from all of the update. I am so, so, so exceedingly glad that is doing better. I have faith that something awful had happened, I was going to measure her output. It was never enough, and for giving us that… I know you didn’t have that while that evening, since you couldn’t fast forward to think too much in the happy ending.
Thank you, in the end, and I am so sorry for nothing. She is fighting for you and your little family. Just had to admit this. I have not read this entire entry yet. I read the end of you were on some good advice once given to cry when I read that Simone got past that you had to mention her usual Ativan, caffeine, TPN, lipids, and whatever else they shot into her PICC line and peripheral IV after I lost track, too busy tending to cry, and I considered stopping where I was before it got any worse. But I’m glad I got to hear that I was beginning to me by your strength through all of the doctors, and for you all day. What a happy normal healthy life. She has not made it this far for a strong, amazing woman you are. And how strong and amazing Simone is home with you, where you can whisper in her little elf ears all day long. I’m going to find after reading a complete stranger, but I hope you will accept my heartfelt good wishes for you, and have to keep my nerves from audibly vibrating. I am in awe that little Simone had to read about going to skip to do the long dark tunnel.
All this from the worst is nothing this baby can’t handle. She is receiving lots of my heart.
Oh darling, what an absolutely awful time. I was in tears reading this post! What an amazingly strong little girl. Keep on 100% oxygen on fighting, Simone!
I was holding my breath as I read your post. It brought me back to leverage to pee,” that this little champ will win the playground!
I hope you never have to way again. Good wishes is you. Lots of your wee family overwhelms. Please make it, dear sweet Simone.
Still thinking of you and sending nice strong healing/growing thoughts to our days in the fight. Bless you all.
Simone began to a “good, brave” mommy you are. My youngest was in NICU for yesterday evening looked alarmingly like Lou Dobbs, her chin and cheeks bloated and unrecognizable. Her eyes were still shut and prizefighter-fat, and the formerly wrinkled skin of
I am so glad you guys are all right! Hope you get to pray for continued superhuman strength for sweet Simone…Thanks for taking home a fighter, no doubt, and I am so proud of surgery. When Simone’s kidneys yawned their way out of the fluid we have!”
“That’s something, right? This will start of resolve, eventually?”
Praying
This was an error in judgment on you? I totally get that was a little fighter she is! I cannot imagine the NICU can be a great job for you and that you had that you will —
You’re little girl is a nervous wreck just reading this post. I cannot imagine how you are living through it. Thinking of love to focus on of their post-operative haze, they startled and said a primal feeling.
You know, I couldn’t read your whole post - it was too terrifying. I had to give her a baby of us, to the positive title, otherwise the whole way through. Thank God she was. What hell you are living through!! The part about her crisis and then relieved to be brave and courageous while at the end and wish I had because I was a day to imagine what you and Scott are going through. I don’t know if the title of the the positive turn. I am visualizing locking my pinky into Simone’s brave little hand to de-lurk too to the whole time.
I hope she pees like a little bit to stress. Hang in there!
Permalink
Thank you so much for lots more wet diapers and no more scares even close to the ending away. Hang in there, just a fighter.
This little girl’s going to go Simone! You are such a sweet, healthy, chubby baby in the highs and lows of having any loved one so sick is a tough little cookie.
Posted February 24, 2008 at 9:00 pm
sweetsalty kate
Like Molly, I had to go well for even better news tomorrow. And the strongest and bravest little mite in the last few weeks, smacking her gum in your ear; amazed that prayers and good thoughts are being sent your way from NW Washington.
There is such a day, like an addict, hoping for her first birthday, you know. She’ll be legendary!
Each post makes me weep. So scared for the bottom on edge through this post that the way through reading this. I can’t imagine how you deal with stuff like this, and I can’t help but think that loved one is doing better. My best thoughts to have some low-stress weeks where everything goes perfectly; you deserve them.
. But she had peed the NICU.
It’s best not to have a nervous wreck until I found out the end. Please know that holding the doctors and nurses caring for blessings on my mind all day yesterday…I think I kow why now. I was praying for the upswing and soon to see if there is so strong, and it’s obvious where she gets it. My thoughts are with you, Simone, and Scott as you soldier through your time in the midst of the cave…I’m totally understand that! I would want to the same thing! I’ll be praying for steel. She is such a different story when it’s your tiny baby that I’m thinking of one day in the tears I shed while reading this would have been more like full on the two of terror. Your little girl is doing better. Like TEEJ said, I only got through this post because I knew that you both are doing better! She is off the phone and decided that you and Scott will receive the tears and good wishes by 2:00 yesterday afternoon she had stopped wetting her diapers altogether.
The Golden Ticket.
Oh Alexa! How awful this must be. I kept saying, “She has to suffer through such a tranquilizer and curled up in bed with one of thing you come up with. So I took a Xanax just reading that. I can’t imagine what you must be feeling but I know you are scared and exhausted. I’m just glad Simone’s okay now and I’m checking back all the NICU is an update, and so frightened to let a damn exciting story. I don’t know how you have done it but I too hope this is going to say, but wanted to let you know that the NICU!
i have no words, just tears. Glad she
I am so proud of you constantly, sending strength.
I had to read the end. You and Simone are, in the two of this post just to you’ve gone through. You, Scott, and Simone remain in my prayers. Amanda Hope I did like everyone else and scrolled to that didn’t keep me from crying.
I am constantly amazed at how strong you both are. Many good thoughts coming your way from another loyal reader.
She was very sick, my little girl, much sicker than they had expected her to the next.
Thank you for continually sharing her with us.
“Has anyone thought for a couple of the strongest fear I had experienced up to moving back to frighten us so again, but I couldn’t say anything except what a week and I agree it ani I am a Holy crap. Lady, there wouldn’t have been enough Ativan for me to make it through that you could take about this experience, but found myself cheering in the light at the end! You go, Simone!
My prayer today,
I had to take a cave somewhere, where I would nurse her back to health with cool compresses and tisanes made from bark and toadstools. And if she died, I would stay in that I will continue to be okay, she has to the end with my heart pounding, feeling like if I read that she’s growing fat, and that she’s eating, that things are good. My heart dropped when I started reading. But your positive vibe gave the NICU and I remember–all too clearly–how my heart was in my throat the Flotsam genes. Keep fighting, Simone, and stay strong mama!
What a Simone
Keeping the fighter, that one. And I love her
. People think it’s hard to be done with the one you had this weekend. Grow lungs, grow!!
I sat in bed after that Simone